Nystagmus Network

The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.

The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.

 

Who to contact

Contact Name
Sue Ricketts
Contact Position
Executive Information and Development Manager
Telephone
01427 718093 01427 718093
E-mail
info@nystagmusnet.org
Website
Website Address
Scan to visit this website
Facebook
NystagmusNetwork
Twitter
NystagmusUK
Notes

We provide support and assistance to children and young people with Nystagmus. in addition, we offer an advocacy service and free 24/7 support on our website. telephone helpline and e mail facility is also available free of charge.

Where to go

Name
Nystagmus Network
Address
70, Hyde Vale
London
London
London
Postcode

SE10 8HP

View SE10 8HP on a map
Notes

We operate a virtual service and have no physical premises however we have website support and information service and telephone helpline available, 

 

Costs

Nil  per year
Details
Membership is available however not a pre requirement to access free support and information

Availability

Referral
No
Referral Details

We support all age groups free of charge. Self referral via telephone or email  24/7 support and advice on website  9-5 telephone support service

 .

More SEND Information

Description

We support all age groups free of charge especially carers and parents of children and young people

Self referral via telephone or email  24/7 support and advice on website  9-5 telephone support service

Contact Name
Sue Ricketts
Contact Telephone
01427718093
Contact Email
info@nystagmusnet.org
Links
Website Address
Local Offer Age Bands
0 to 5 years
5 to 11 years
11 to 19 years
18 to 25 years

Actions

Local Offer Details Save to shortlist
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